Bioethics panel urges more gene privacy protection

10:27 PM, Oct 10, 2012   |    comments
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WASHINGTON (AP) - Research being released Thursday by a presidential commission finds only a patchwork of protections for medical data obtained through the decoding of DNA.

The report by the Presidential Commission for the Study of Bioethical Issues comes as the pricetag for whole genome sequencing is dropping rapidly and the procedure could become common in doctors' offices very soon.

The commission found that it's legally possible to collect and submit a DNA sample from an unwitting individual in about half the states. Gene mapping can predict what diseases are lurking in test subjects.

Mapping entire genomes now is done primarily for research. But the commission found that the price of sequencing has dropped from thousands to about $1,000.

The commission has come up with a list of recommendations to protect privacy, including a ban on sequencing without the consent of the person from whom the sample came.

The Associated Press

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